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Family-Centered Care in Pediatric Oncology in Portugal


 
Dublin Core PKP Metadata Items Metadata for this Document
 
1. Title Title of document Family-Centered Care in Pediatric Oncology in Portugal
 
2. Creator Author's name, affiliation, country Ágata Salvador; Faculdade de Psicologia, Universidade de Lisboa, Lisbon, Portugal
 
2. Creator Author's name, affiliation, country Carla Crespo; Faculdade de Psicologia, Universidade de Lisboa, Lisbon, Portugal
 
2. Creator Author's name, affiliation, country Susana Santos; Faculdade de Psicologia e de Ciências da Educação, Universidade de Coimbra, Coimbra, Portugal
 
2. Creator Author's name, affiliation, country Luísa Barros; Faculdade de Psicologia, Universidade de Lisboa, Lisbon, Portugal
 
3. Subject Discipline(s)
 
3. Subject Keyword(s) children, parents, neoplasms, family-centered care, delivery of health care
 
4. Description Abstract Aim: This study aimed at describing parental perceptions of Family Centered Care (FCC) according to sociodemographic and clinical variables in the Portuguese pediatric oncology setting. Method: The participants were 204 parents of children/adolescents with cancer followed at two pediatric oncology units. Participants provided sociodemographic data and completed the Measure of Process of Care (MPOC-20), consisting of two subscales: Services and General Information. Pediatric oncologists provided clinical data. Results: Both parents’ and children’s age were associated with higher scores on both domains of FCC (Service and General Information). Multivariate analyses showed that parents of children (vs. adolescents), parents with a higher education (vs. secondary or less) and parents of children receiving treatment (vs. completed treatment) reported lower perceptions of FCC (Services and General Information). No differences were found according to time since diagnosis, number of hospitalizations and intensity of treatment. Conclusion: Findings suggest that younger parents with higher education, parents of younger children and parents of children receiving treatment may be at higher risk for perceptions of formal care as less family-centered.
 
5. Publisher Organizing agency, location PsychOpen
 
6. Contributor Sponsor(s)
 
7. Date (YYYY-MM-DD) 2016-12-15
 
8. Type Status & genre Peer-reviewed Article
 
8. Type Type
 
9. Format File format PDF (Português (Portugal)), HTML (Português (Portugal))
 
10. Identifier Uniform Resource Identifier https://pch.psychopen.eu/article/view/180
 
10. Identifier Digital Object Identifier (DOI) https://doi.org/10.5964/pch.v5i3.180
 
11. Source Title; vol., no. (year) Psychology, Community & Health; Vol 5, No 3 (2016)
 
12. Language English=en pt
 
14. Coverage Geo-spatial location, chronological period, research sample (gender, age, etc.)
 
15. Rights Copyright and permissions Copyright (c) 2016 Salvador, Crespo, Santos, Barros
https://creativecommons.org/licenses/by/3.0/

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