Family-Centered Care in Pediatric Oncology in Portugal

Ágata Salvador, Carla Crespo, Susana Santos, Luísa Barros

Abstract


Aim: This study aimed at describing parental perceptions of Family Centered Care (FCC) according to sociodemographic and clinical variables in the Portuguese pediatric oncology setting. Method: The participants were 204 parents of children/adolescents with cancer followed at two pediatric oncology units. Participants provided sociodemographic data and completed the Measure of Process of Care (MPOC-20), consisting of two subscales: Services and General Information. Pediatric oncologists provided clinical data. Results: Both parents’ and children’s age were associated with higher scores on both domains of FCC (Service and General Information). Multivariate analyses showed that parents of children (vs. adolescents), parents with a higher education (vs. secondary or less) and parents of children receiving treatment (vs. completed treatment) reported lower perceptions of FCC (Services and General Information). No differences were found according to time since diagnosis, number of hospitalizations and intensity of treatment. Conclusion: Findings suggest that younger parents with higher education, parents of younger children and parents of children receiving treatment may be at higher risk for perceptions of formal care as less family-centered.

Keywords


children, parents, neoplasms, family-centered care, delivery of health care